Cerebellar ataxia

Paper published comparing specialist ataxia centres with non-specialist services in terms of care, organisation, health services resource utilisation, and costs in Germany

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Ataxia UK has worked closely with researches at the London Ataxia Centre and other experts on a research study assessing the impact of specialist ataxia centres (SACs) in Europe. This was part of the Value of Treatment (VoT) project supported by the European Brain Council, a non-profit organisation which promotes brain research to improve the […]

Paper published comparing specialist ataxia centres with non-specialist services in terms of care, organisation, health services resource utilisation, and costs in Germany Read More »

PROSPAX Consortium publishes results from their 4-year project on spastic ataxias, with more to come

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About the PROSPAX project The PROSPAX consortium of patient groups, researchers and clinicians across Europe and Canada (including the UK), set up the PROSPAX project to study the progression of spastic ataxias over time, in a rigorous and harmonised way – from the clinical to the molecular level. This has included clinical, imaging, digital-motor and

PROSPAX Consortium publishes results from their 4-year project on spastic ataxias, with more to come Read More »

Highlights of the International Congress for Ataxia Research 2024

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The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was organised by Ataxia UK, the National Ataxia Foundation, the Friedreich’s Ataxia Research Alliance, and the Ataxia Global Initiative. This was the biggest ICAR yet, with 600 in-person attendees and 50 attending online from 32 countries, including researchers,

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Ataxia patient organisations united at the 2024 Euro-ataxia annual conference 

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The 2024 Euro-ataxia conference took place in London on 15th-16th November, organised by Ataxia UK. The conference was a great success; fourteen ataxia patient groups, as well as researchers and pharmaceutical representatives gathered to share best practice in healthcare and research.   Talks included updates from clinical trials, patient group presentations, and panel discussions. On the

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Biohaven announces positive results in their study of Troriluzole for Spinocerebellar ataxia (SCA)

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On September 23rd, 2024, the pharmaceutical company Biohaven announced positive topline results from their study of the drug Troriluzole to treat SCAs 1,2,3,6,7,8 and 10.    Those with SCA who were treated with Troriluzole showed a 50 – 70% slowing of disease progression, compared to those with SCA who were untreated over a 3-year study

Biohaven announces positive results in their study of Troriluzole for Spinocerebellar ataxia (SCA) Read More »

Satisfaction is significantly higher in those attending UK specialist ataxia centres compared with those who do not, new paper shows

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Ataxia UK has worked closely with the London Ataxia Centre researchers and other experts on a research study assessing the impact of specialist ataxia centres in Europe. This was part of the Value of Treatment (VoT) project supported by the European Brain Council, a non-profit organisation which promotes brain research to improve the lives of

Satisfaction is significantly higher in those attending UK specialist ataxia centres compared with those who do not, new paper shows Read More »

Quality of care is higher in Specialist Ataxia Centres, European study finds

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Ataxia UK worked closely with the London Ataxia Centre researchers and other experts on a research study assessing the impact of Specialist Ataxia Centres in Europe. This was part of the Value of Treatment (VOT) project supported by the European Brain Council, a non-profit organisation which promotes brain research to improve the lives of Europeans

Quality of care is higher in Specialist Ataxia Centres, European study finds Read More »

Crowd

Reflecting on the 7th International ARSACS Symposium 2023

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The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming 200 people online and in-person, from researchers to clinicians, neurologists, physiotherapists, medical students, patients and their families. The event was an opportunity to hear about the latest advancements in ARSACS research and build upon knowledge to lead

Reflecting on the 7th International ARSACS Symposium 2023 Read More »

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