PROSPAX

Highlights of the International Congress for Ataxia Research 2024

Leave a Comment / ARSACS, Cerebellar ataxia, Event, PROSPAX, Research, SPG-7 / By

The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was organised by Ataxia UK, the National Ataxia Foundation, the Friedreich’s Ataxia Research Alliance, and the Ataxia Global Initiative. This was the biggest ICAR yet, with 600 in-person attendees and 50 attending online from 32 countries, including researchers, …

Highlights of the International Congress for Ataxia Research 2024 Read More »

An interview with Netherlands-based PhD researcher Ilse Willemse, on the SPAX app for home monitoring in ARSACS and SPG7 as part of the European PROSPAX project 

Leave a Comment / ARSACS, PROSPAX, Research, SPG-7 / By

The PROSPAX (PROgression chart of SPAstic ataXias) project focuses on ARSACS and SPG7, and is a collaboration between neurologists in several sites across Europe and Canada. The overall aim is to gain a better understanding of how spastic ataxias progress over time to prepare well-designed treatment trials for these conditions, that will be applicable to many of the >100 other …

An interview with Netherlands-based PhD researcher Ilse Willemse, on the SPAX app for home monitoring in ARSACS and SPG7 as part of the European PROSPAX project  Read More »

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe

Leave a Comment / ARSACS, PROSPAX, Research, SPG-7 / By

The PROSPAX (PROgression chart of SPAstic ataXias) project is a collaborative effort between neurologists across several sites throughout Europe and Canada. The aim is to better understand how spastic ataxias progress over time to prepare well-designed treatment trials for these conditions.  This is called ‘trial-readiness’.   The study which focuses on Autosomal Recessive Spastic Ataxia of …

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe Read More »

PROSPAX annual meeting

PROSPAX hosts 2023 annual meeting in Turkey

Leave a Comment / ARSACS, Event, PROSPAX, Research / By

On 22nd and 23rd June 2023, the PROSPAX consortia held their annual meeting at the Rahmi M. Koç Museum in Istanbul, Turkey. The PROSPAX project aims to study the progression of Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS) and Spastic Paraplegia 7 (SPG7) over time; from the molecular to the clinical level, including brain imaging, …

PROSPAX hosts 2023 annual meeting in Turkey Read More »