Good Practice

One of the main objectives of Euro-ataxia is to share resources between members to promote best practices for the benefit of ataxia patients. The following are resources that we believe should be shared between carers, patients and professionals with ataxia.

Medical Guidelines

Ataxia UK
Management of the ataxias: towards best clinical practice
The value of these Guidelines was recognised by the European Reference Network for rare neurological diseases, Nov 2018.

ADCA Netherlands
Information for GPs and physiotherapists

AFAF
Newsletter to Health Professionals:

  1. Recommendations from experts in the field of ataxias and cerebellar or spinocerebellar degeneration
  2. Psychological follow-up
  3. Pregnancy
  4. Genetic Counselling
  5. Management of Spasticity
  6. Urinary problems in spinocerebellar disorders
  7. Role of Physical Medicine and Rehabilitation (P.M.R) consultation
  8. Swallowing Problems

European Reference Network for Rare Neurological Diseases
Euro-ataxia is also affiliated with the European Reference Network for Rare Neurological Diseases (ERN-RND). This is an EU-funded initiative with the aim of creating a network of collaborating specialist centres within EU member states that pool expertise and help to ensure that knowledge is shared.

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