The International Euro-ataxia Conference is an annual event that aims to promote global research on all ataxias and improve networking among European and international ataxia Patient Organisations.
The 2024 conference was held in London from 15-16 November 2024. The conference was organised by Euro-ataxia and hosted by Ataxia UK. Patient groups from around the world who are not Euro-ataxia members and are attending ICAR 2024 were invited to attend, making it an international patient advocacy group meeting.
Read a summary of the conference here.
Euro-ataxia conference 2023:
- Dr Jörg Schulz – ‘The importance of natural history and biomarker studies in the ataxias – using data from the European Friedreich’s ataxia study (EFACTS) – Click for slides
- Dr Myriam Rai – ‘The FA Pipeline’ – Click for slides
- Dr Barbara Borroni – ‘The potential value of transcranial stimulation for symptom relief in ataxias’
- Professor Paola Giunti – ‘Biomarkers in the SCAs’
- Dr Helene Puccio – ‘Using animal and cell models to test treatments for ataxias – update on TREAT-ARCA project’
- Dr Claire Ewencyzk – ‘End of life discussions with patients affected by neurogenetic diseases and their caregivers: DIRAGENE study’
- Professor Anja Lowit – ‘Management of the ataxia – speech therapy’ – Click for slides
- Mariana Kotzamanidou – ‘Aqua-therapy for ataxias – perspective from Greece’ – Click for slides
- Updates from pharmaceutical companies with ataxia clinical programmes:
- Biohaven – Click for slides
- Vico Therapeutics
- Flash talks (5 mins each)
- Dr Rosella Abeti – ‘Bench to bed: A story of a novel compound’
- Dr Ana Claro – ‘Nanobodies to combat Machado Joseph Disease’
- Enzo Nio – ‘Cerebellar ataxia and fear extinction’
- Dr Celeste Suart – ‘Exploring DNA damage and repair in SCA1’
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RDCOFUND-EJP N° 825575.
We are very grateful to the sponsors of this event:
