Research News & Updates

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Paper published comparing specialist ataxia centres with non-specialist services in terms of care, organisation, health services resource utilisation, and costs in Germany

15 February 2025

Ataxia UK has worked closely with researches at the London Ataxia Centre and other experts on a research ...

PROSPAX Consortium publishes results from their 4-year project on spastic ataxias, with more to come

10 January 2025

About the PROSPAX project The PROSPAX consortium of patient groups, researchers and clinicians across Europe and Canada (including ...

Highlights of the International Congress for Ataxia Research 2024

12 December 2024

The International Congress for Ataxia Research (ICAR) 2024 took place in London from 12th – 15th November. It was ...

Ataxia patient organisations united at the 2024 Euro-ataxia annual conference

12 December 2024

The 2024 Euro-ataxia conference took place in London on 15th-16th November, organised by Ataxia UK. The conference was ...

Biohaven announces positive results in their study of Troriluzole for Spinocerebellar ataxia (SCA)

23 September 2024

On September 23rd, 2024, the pharmaceutical company Biohaven announced positive topline results from their study of the drug ...

Satisfaction is significantly higher in those attending UK specialist ataxia centres compared with those who do not, new paper shows

11 September 2024

Ataxia UK has worked closely with the London Ataxia Centre researchers and other experts on a research study ...

An interview with Netherlands-based PhD researcher Ilse Willemse, on the SPAX app for home monitoring in ARSACS and SPG7 as part of the European PROSPAX project

6 March 2024

The PROSPAX (PROgression chart of SPAstic ataXias) project focuses on ARSACS and SPG7, and is a collaboration between neurologists ...

The PROSPAX Consortium publishes an infographic on their natural history study of individuals with ARSACS and SPG-7 in Europe

26 February 2024

The PROSPAX (PROgression chart of SPAstic ataXias) project is a collaborative effort between neurologists across several sites throughout ...

Quality of care is higher in Specialist Ataxia Centres, European study finds

24 February 2024

Ataxia UK worked closely with the London Ataxia Centre researchers and other experts on a research study assessing ...

Reflecting on the 7th International ARSACS Symposium 2023

22 November 2023

The 7th International Symposium on Autosomal Spastic Recessive Ataxia of Charlevoix-Saguenay (ARSACS) was held on 19th-20th October, welcoming ...

PROSPAX hosts 2023 annual meeting in Turkey

15 November 2023

On 22nd and 23rd June 2023, the PROSPAX consortia held their annual meeting at the Rahmi M. Koç ...

Ataxia UK hosts first-ever event for UK-based researchers

15 November 2023

On 12th September, Ataxia UK hosted its first networking event for UK-based researchers in London. We were excited ...